When we place ourself in a private bubble from life


Some place themselves in a private space

Some place themselves in a private space

 

When it became clear to me all these years ago I had Chronic Pain and other stuff wrong with me, I did not think it would impact my life the way it has. When I was told, I was still working and still active as a football coach and manager (Soccer for anyone in the USA)

Then the pain came, and the pride took a mauling. I wasn’t the same me, I had become someone I didn’t like, I had to learn to like myself all over again, and it was the hardest thing I have done, and to some extent, still doing

I speak to many people in pain, and just by listening I am helping them, and sometimes when you really listen you can tell that the person’s life is not what it once was. There is the argument, and this, again, is where my guilt comes from, when I realise somewhere, people are worse than me, people are dying, and live in a worse place than I do. But I have to remind myself this is my life, my story I am writing about, and I do it to help both other people and myself

I am blessed with my home, my kids, my partner, and my close family who I miss terribly. I say miss terribly, because when the pain came I placed myself in an imaginary bubble, where I was safe. And this is common for people to do. I stopped visiting people and made up excuses when people wanted to visit me. This is normal behaviour, and I cry a lot knowing I want to be with loved ones more. I am missing life due to the pain, and the bubble I am in, so I must fight! I must, in my late 30′s break away from it before I am stuck for good, but I am sure too many people care for me and love me for them to allow me to do this

Somewhere in my subconscious I know I had or have to change this. I harbour ideas of getting back into Football management, and then my head drops as I know it will hurt. So I have a decision to make, do I stay in this bubble in pain, or do I get back out there and face the word, and be in a bit more pain. The answer is very easy, but doing it is not. I have tried so many times to break the bubble, close the door on the bubble, only to step back inside when my pride got dented for whatever reason.

When I see people I have not seen for say 10 years, they think I am the same Shaun, and I am, but they don’t know the pain, they don’t know how the pain hurts just me, but the people around me. My family love me and I am blessed in knowing this, just typing it brought a smile to my face. Long story, something happened today, with a family member that made me smile

So we all have a bubble, some stay in it for a short time, some longer, some never escape it.  I know many people who suffer depression do this, they have another word for it, they just “Hide away from the world” I call it “In my bubble” So when I speak to people who do likewise, we help each other.

A girl I know just helped me, a small act of individual kindness from a woman I love. What she just did made my day and put a smile on my face and I can’t thank her enough. So even today, both the girl I am speaking about and I learnt something. And that is what living is, learning to cope, and learning what is happening when you step out of the bubble, or allow someone into your bubble. The people in my house get in my bubble, not many others do. A girl I know just entered it

For anyone living in a bubble, or hiding from the world, know it does not have to be this way, you can show your face, you can go out, you are brave enough and you can do it. Why do I know this? I know this because every time I blog, or share, I open my private bubble to the planet. So anyone who does a blog and hides from the world, you are not alone to the world, you are asking strangers to enter your world.

I hope people understand what I am talking about here, for me it is very personal

More Love, less hate

Shaun

I dedicate this to a young woman I love more than she knows :-)

family-relationships-quotes-sayings-man-woman

39 comments on “When we place ourself in a private bubble from life

  1. Very well put. I have had family members in “bubbles” and have also been in my own “bubble” in the past. Sharing is caring :) Thanks for this post.

  2. This has just made me think of a scene from my favourite film, Velvet Goldmine. The main character sees someone on the TV who he identifies with and wants to point at the TV and scream “THAT’S ME, THAT IS!!!!” I feel like a hermit of late because, not only do I not go out socially, I also work from home (chronic pain sucks!). You’re quite right, it’s one thing saying that you want to go out, it’s quite another actually doing it.
    Feeling less strange and isolated is very comforting. Thank you.

    • No, thank you….

      Through this blog I have extended my pals on here.
      All the way from Scotland. Chronic pain is a (insert swear word)
      But through debate, being honest and speaking to people like you..
      Thinks become a bit easier..

      Appreciated..
      Shaun

  3. yes – you have a bubble and i have a dark hole. i could never say that I understand the depth of your pain. i used to teach warm water arthritis classes – all of my students had pain of some sort – but i was always amazed how much they enjoyed each others company – even it it was only for 45 minutes once or twice a week – they kept going. i remember hearing comments from other health club members saying – what do they do? they do nothing……..i will not continue with the derogatory comments. one time, i could not contain my disgust. i said in a tactful way that these ladies and gentlemen live thru a constant hell as it were – and do you see them sitting at home feeling sorry for themselves? No- they are trying to enjoy the life they have been given despite the obstacles, even odds, they are facing and i then said that we could learn a hell of a lot from these wonderful people who come to take a 45 minute class once or twice a week.

    pain sucks – it just does but we have to try the best we can to enjoy what life we have left on this planet. even if it means, poking a toe out of the bubble – every once and while:)

    i enjoy reading your words- btw:)

    • Discrimination is rife with these invisible illness’s, as that is what they are. I am not in a Wheelchair, Someone could spend a few hours with me and not notice. So I know what you mean.

      Baths help me a lot. Getting out is the worst bit, lol

      Thank you

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